The Assistance Fund — Rett Syndrome Fund

Copay assistance fund status, eligibility, and covered drugs — for patient access and billing teams.

Maximum award No stated maximum unless otherwise specified · Income Income-based eligibility per FPL; threshold not published · Copayments, health insurance premiums, therapy administration costs, physician copayments, treatment-related travel, diagnostic laboratory tests, genetic testing

OPEN
Status verified June 3, 2026 · Source: The Assistance Fund fund page ↗

Fund facts

Published terms from the foundation. Per-patient eligibility and amounts are confirmed at application.

Assistance type
Copay Grant
Maximum award
No stated maximum unless otherwise specified
What it covers
Copayments, health insurance premiums, therapy administration costs, physician copayments, treatment-related travel, diagnostic laboratory tests, genetic testing
Income limit
Income-based eligibility per FPL; threshold not published
Insurance
commercial medicare medicaid
Diagnosis required
FDA-approved treatment prescription required and covered by health insurance
Residency
U.S. resident
ICD-10
F84.2
Renewal
annual reenrollment (calendar year)
Launched May 2023. Broad coverage incl. therapy + genetic testing.

Covered drugs in our billing library

Drugs whose J-codes this fund matches. Each links to its billing & coding reference.

No drugs from our library currently map to this fund.

This fund is closed — here's the move

Fund status changes with donations, often without an announcement — confirm directly with the foundation at 855-509-2452, and check the alternatives below.

Common questions

Is the The Assistance Fund Rett Syndrome fund open?

As of June 3, 2026, the The Assistance Fund Rett Syndrome fund is OPEN and accepting applications. Verify at time of service: 855-509-2452.

How much assistance does the Rett Syndrome fund provide?

No stated maximum unless otherwise specified. Copayments, health insurance premiums, therapy administration costs, physician copayments, treatment-related travel, diagnostic laboratory tests, genetic testing

What are the income limits for the Rett Syndrome fund?

Household income must be Income-based eligibility per FPL; threshold not published. U.S. resident.

What insurance does the Rett Syndrome fund accept?

Accepted: commercial, medicare, medicaid.

Patient or caregiver? Show this page to your infusion center's financial counselor — they can check what you'd qualify for and apply on your behalf, or call The Assistance Fund at 855-509-2452.